Hair?

Well, maybe. Definitely some peach fuzz. Ravi has eyebrows and eyelashes now, the beginnings of a moustache, some peach fuzz on his head, and a lot more energy. He is greatly enjoying being home and only going to the clinic once a week. We are in a holding pattern right now. He does not have a PET scan for another 10 days. We meet with his oncologist tomorrow to discuss next steps. The plan, as I understand it, is to switch to a different type of chemo that is less hard on his kidneys. He had his GFR last week which measure kidney function. The last cycle of chemo definitely hurt the kidneys. We are hopeful that they will recover, but that is the last time we will be treating the osteosarcoma with Ifosfamide.

The next step in the journey, after the PET scan, is two different types of chemo. One is given on day one. Both are given on day eight. The third week is a week off. Each cycle is 21 days. The team is hoping to do 6 cycles, or until the cancer is gone. The great news is that this type of chemo can be done outpatient! This makes me happy, and I know it will help Ravi. He has become very scared and anxious about leaving the house, even if it is to go to fun places. He is afraid he will end up in the hospital again for another month. I can’t blame him. I am afraid of that, too. Dr. Greengard is also having conversations with the thoracic surgeon at Mayo about a good time to get rid of the the mets in his lungs. Honestly, this terrifies me, but it needs to be done. I take comfort in knowing that she is one of the very few surgeons in the world who can do this type of surgery. I believe she will be an important part of Ravi’s cure.

So, where are we now? At home, and slowly recovering. Ravi is slowly gaining weight, strength, and hair. He is smiling and laughing more. He went to a party last weekend and had a good time. He is looking forward to a friend coming over today with his guitar. We are enjoying brisk fall days and cuddling with our animals. We thank you all for your love and support. I will touch base after our team meeting on Monday. Keep us in your prayers and good energies. Be good humans. Peace.