Dear Ravi,
First of all, some very good news. Two cancer acts have been signed into law. This includes the Mikaela Naylon Give Kids a Chance Act, and the Accelerating Kids’ Access to Care Act. Mikaela was a young woman with osteosarcoma. In her final weeks of life, while on hospice care, she journeyed to Washington DC and spoke on Capitol Hill about the need for more modern treatments to combat rare diseases. Her final acts were ones of advocacy. I wish I could reach out and give her mother a huge hug. Mikaela was like you, fierce and strong, even while facing a stage 4 cancer diagnosis. I will light a candle for her this Sunday at church.
Daddy and I are back from Arizona, adapting to the cold. It is not sub zero anymore, so we have been taking the dogs for daily walks. I even ran a little bit with Gloria, yesterday. It is still very icy, so I am being cautious. I just received a very nice phone call from April, at a Christian publishing company. She said that their review board had read our manuscript, thought it was very well written and interesting and would like to offer me a contract. I am expecting several more conversations with publishers this week and then will choose the one that best fits our needs and our budget. Someway or another, Ravi, we produced at 362-page document that will be released in book, audio and eBook form. It does not seem real. I have wanted to be a writer since Helen Trew first put a pencil in my hand, gave me a journal, and said that I could write anything that I wished. I have been keeping a journal or a notebook ever since. What makes me very sad is that Anabel got hold off all of my notebooks from college, read them and then threw them away. She said that they were just too sad. This begs the question, of course, what was she doing reading my personal journals? In them I also had letters from Mom Sue and friends, jottings on books I had read, what it was like to be a collegiate runner and scholar, and lots of other things as well. Over 30 years have passed, but I still grieve the loss of those notebooks. It felt like she was stealing my voice and erasing my existence. This is only one of the many reasons your father and I have cut contact with my family of origin. Everyone has a story, and they deserve to be able to write their thoughts and not have them thrown into a trash can like they did not matter.
Enough of that, I am still on a high that publishers are reading our book and deeming it fit for print. In the past year, we have had over 4,000 visitors to our blog site. The bulk of these readers are from the United States, but some are from other far flung areas. We have readers from Pakistan, Vietnam, China, Japan, Denmark, Germany, Ireland, the UK and more. Your story is being heard. Ravi, my love, you are not forgotten.
The only thing that bothers me slightly about World Cancer Day is people tend to romanticize it, or make the cancer patients into superheroes or angels. Ravi, your bravery was that of a superhero, but I will never call you an angel. You were a bit of an imp. You stole French fries from complete strangers, launched yourself out of your bedroom window to walk to Super America to get gummi bears, took unchaperoned trips to Subway, and for 22 years marched to the beat of your own calliope. Darling, I love you dearly, but I earned every single grey hair that is on my head! You were sweet, caring, and funny, but you were not angelic. Total stop.
I had a really good conversation with Vanessa at the Osteosarcoma Institute yesterday. We were talking about fund raising. Saroma month is in either June or July and I will do some fund raising then. I have also decided to add a shoutout to OSI at the end of our book as a way for readers to make contributions towards better osteosarcoma outcomes. This seems like a better and more efficient way to raise money than just trying to do it through Facebook or social media.
Ravi, I miss you. I feel that good things are going to happen with our book, but I wish that you were here with me to share the joy and excitement. I never claimed to be your voice, but I am proud to tell your story. Love you to the moon and back. Mom.