Greetings, all. Ravi is loving being home from the hospital and on his good days has been going to school. His hair is coming back in, looking like a 5 o’clock shadow all over his head. He is eating well and is gaining energy and endurance. Loves to go for walks around the neighborhood. Tomorrow we will break out the adaptive bike.
It has been an emotional couple of weeks. Two weeks ago, we met with Dr. Greengard, his oncologist. She said that as much as we wanted a cure for Ravi, it might not be possible. Surgery was not an option, but we would talk more after his PET scan. We were devastated. Last Monday he had a sedated PET scan. I spent 48 hours pacing the floors waiting for results. Finally, the results came, and they were good. The tumors in his lungs are stable, all the other ones show much decreased metabolic activity. On Thursday, we met with Dr. Greengard again. Suddenly, the conversation changed from how to give Ravi some quality of life, to how aggressive do we want to be. He has one round of Doxy left. Then we will test his kidneys. If the kidneys have recovered, we can do one more round of cisplatain. Then she wants to move on to targeted radiation therapy to the tumors in his tibia and L 3. The main tumor, in his left humerus, is too big to attack with radiation, even though it has shrunk considerably. She wants us to talk to Dr. Cheng, a sports medicine surgeon whom we saw back in December, about removal of the tumor. That meeting is June 5, right before an infusion of Doxy. She also wants us to talk to a lung surgeon, to take out the nodules. Right now, the nodules are stable, just sitting there. They could just sit there for years, or they could metastasize. I don’t want to look back in 5 years and wish that we had been more aggressive. We have a lot to think about, but right now are letting Ravi take the lead. These are not trivial surgeries. He would lose some, we don’t know how much, mobility in his left arm, and lung surgery would keep him in the hospital for close to a week. Ravi is firmly invested in being alive. Throughout this whole ordeal he has never once faltered or felt sorry for himself. Ravi wants to be alive. As long as Ravi clings to this spark, this zest for life, we will fight for him. The oncologist agrees with us.
Lots of big decisions to be made in the next few weeks, but we are taking things one day at a time. Ravi attended a party last night and had a great time. He is graduating from Focus Beyond on June 13 in cap and gown. He wants to go for walks, go to Taco Bell, and ride his bike. He wants to laugh at the absurdity of life in general. And we want these things for him. Thank you all so much to everyone who has showed up, either in prayer, good intentions, or in person. From doing things like organizing my kitchen, sending over a meal, or pilling my cat. All of these things are deeply appreciated. Please keep the prayers, good intentions and good energies coming. They help! We are letting Ravi lead the way, and we will follow. Peace, and be good humans.