On the way to the clinic yesterday Ravi and I got a call we were not expecting. It was from Kelli, who runs Nick’s Wish. She was happy to tell us that Ravi had been chosen to have his wish granted. We were both floored and excited. Ravi has never seen the ocean. We want to take him to California and see the Pacific. Kelli said this was entirely possible. The wish granter will fly us to California, rent us a car, put us up in a hotel, and give us a stipend for 3 different activities of Ravi’s choice, then fly us home. Right now we know that we want to go to the beach, visit the San Diego zoo, and see the USS Midway. We will do some searching around to see what else one can do in San Diego. We are hoping to do this trip in March, as a celebration for Ravi finishing chemo.
The call was a much-needed lift in a rather difficult week. Ravi’s kidneys are struggling, and we are not sure just why. His creatinine level is much higher than it should be. We are going in for fluids every day this week except for Thanksgiving. Our day starts bright and early tomorrow. We have a kidney scan at 7:3o, then are meeting with a kidney specialist at 8am. We have labs and fluids at 11 am. Today things looked a bit better. His weight was up by one pound. Except for the creatinine, his labs and electrolytes looked good. Hopefully, the kidney doctor we see tomorrow can help us shed some light on this issue. He needs to have another CT scan to make certain that the micro fungal medication he is on has done its job. Usually, a CT scan involves the use of dye, which is hard for kidneys to excrete. So, we are holding off on the scan for a bit. We were supposed to have started chemo last week, and then this week, but could not risk it because of the kidney problems. Hopefully, with all the fluids we are pumping into him, we can resume chemo next week.
Right now, Ravi seems pretty perky. He is eating a bit but taking in most of his nutrition through the g tube. He is drinking a lot. He seems to be in a good mood and not in any obvious distress. We are looking forward to Thursday when we don’t have to go to the clinic and can just enjoy ourselves at home. For the last decade or more, Robert and I have thrown a LGBTQ friendly friendsgiving. This year, we just do not have the time or energy. So, we will just do a small celebration together after I run a 5km Turkey Trot. We hope that next year at this time we can host all of our friends again.
Have a wonderful Thanksgiving. Enjoy your food and your families and friends. Be good humans and we will be in touch. Peace.
Harriet's Hedgehogs and Autism Advocacy 