Fluids!!

I had no idea that extra boluses of fluid would be such a game changer for Mr. Boo. His kidneys were still not happy last week, so we came into the clinic every day except Thanksgiving for him to get extra fluids. Over the course of the week, Robert and I watched him transform from a gaunt ghost who just wanted to lie on his bed so a kid who was getting up to rummage in the fridge, was happy to leave the house, and was much more responsive and expressive. It was a night and day difference that took place over the course of a few days. On Monday, he was deemed well enough for chemo. Tuesday, he was a little tired but still okay, and Wednesday he was showing a definite interest in food. When we went in for labs today I requested more fluids and asked if we could come back tomorrow as well. I don’t think that the nurses are used to a mom who begs for extra trips to the clinic, but they were gracious enough to consider my request. By the time Ravi’s labs were done, they are slowly looking better, the team had agreed that he could come in for more fluids tomorrow. I was delighted. So, tomorrow he gets fluids and then starts PT for his left arm. I am hoping he likes this. Saturday is Special Olympics day at Gopher Women’s basketball, so we are going to a game. Ravi loves to watch women’s basketball games. Next Monday is another round of chemo and I am pushing for more fluids following that. We were offered some time off around Christmas and I turned that down. I want to keep the fluids coming!

So, today is a good day. Ravi was able to walk to the clinic, rather than being pushed in a wheelchair. He is eating huge amounts of sour patch kids and anything else spicy or tart. He decided on Thanksgiving Day that ham is a very good food. We still have a long way to go on this journey, but things are looking up a bit. We get to sleep in our own beds at night. Ravi is feeling better. I have a little more help. Thank you all so much for your prayers and good energies. They mean so much. Be good humans and keep in touch. Peace, Harriet.

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Author: snort262

I am a wife, mom, long distance runner and fierce autism advocate. My background is in education. Currently, I am a paraprofessional at a Title One school, a fighter for kindness and social justice, and a fervent animal lover.

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