Thank you all for your love, prayers, and good energy. As noted previously, Ravi came through his surgery with flying colors. He will be spending the next 6 weeks in a brace to support his left arm. As far as we can tell, he has use of the fingers on his left hand, can wiggle, grasp things, and move them. After the brace is removed, he should have movement from his elbow on down.
The issue right now is his renal function. His kidneys are not happy. They were damaged by a previous type of chemo, and then to add insult to injury, they were further damaged by his anti-epileptic, Topamax. Yesterday, we began titrating down his Topamax and began a loading dose of a different medication. We are very nervous about his, as the Topamax was the one medication that reliably kept the seizures at bay.
We are hoping to come home on Monday. I miss my home, my pets, my bed, and my coffee pot. Mayo is amazing, but I am tired of sleeping on a couch and want my queen sized bed back!
It is almost noon, but Ravi is still asleep. For reasons known only to himself, he stayed up until 4 this morning. He did not seem to be in any pain or distress, it was just another night of RBM, Rapid Boo Movement. Robert will be showing up in a few moments with food, and I am certain he will wake up for that. I plan to get out either for brisk walk or a slow run. The weather and foliage is amazing.
Thank you all for your ongoing support, love, and prayers. We are not alone on this journey. Be good humans and we will be in touch. Harriet.
Harriet's Hedgehogs and Autism Advocacy 