Hello, friends. We are back from Duluth and into the swing of treatment again. Sadly, Ravi’s latest PET scan did not give us the news we wanted. Several more tumors have popped up, and smaller ones that were lurking in the background have grown. The good news is that the mets in his lungs are stable, and the tumors that were treated by radiation responded well. He has begun a daily oral chemotherapy drug called Cabo. He also will be undergoing more radiation to his spine and his left mandible. We are sad about this, because he is still really tired from the last rounds of radiation, but it seems the fastest and most effective way to attack the tumors. He has a swallow study on Tuesday morning, as it has become very hard for him to swallow water or thin liquids, they make him choke and gag. Obviously, this is very scary for all concerned. I give thanks for the G tube because that is how he is getting the bulk of his nutrition and hydration. Wednesday morning, he has a sedated MRI of his left mandible and c spine, and a simulation of how radiation will go. We hope to begin radiation the following week. We welcome and delight in all your prayers, white light, and good energy. They really help.
Friday, I spoke with my editor and by the end of September, my book will be in its final form. Then, begins the search for an agent. Luckily, Abbey, my wonderful editor, will help me with this. I want Ravi to hold this book in his hands as a testament of my love to him.
This week begins the fall schedule for Highland Friendship Club. Ravi is involved in this club and will be in the bowling league and a drumming class. He has tried both of these activities before and really enjoyed them. We are hopeful that this will give him something positive to focus on in the midst of another round of radiation.
September is Childhood Cancer Awareness Month. In a few days I will be releasing a link to a page about Ravi to raise money for better treatments and outcomes for osteosarcoma. On October 6, I will be running the Twin Cities marathon to raise awareness about childhood cancer. This may be the slowest race of my life; I have had no time to do any speedwork. I am getting my mileage in at odd random times throughout the week. But this does not matter. Every mile that I run for Ravi puts us that much closer to a cure for childhood cancer. I am excited to show everyone his blog. Stay tuned!
Thank you for all your support and love. It is deeply appreciated. Be good humans and we will be in touch. Peace, Harriet.
Harriet's Hedgehogs and Autism Advocacy 
wow!! 52Greetings from room 5129
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