Music and Compline

Dear Ravi,

Last night was a beautiful evening in a time of pain and chaos. ICE still continues to roam the streets and abduct innocent people. Daily life in the Twin Cities is nothing like it was 2 months ago. We are living under siege. The choir at St. Clement’s decided to do something amazing. They put together an evening of song, beautiful music in the heart of upheaval and trauma. For part of the evening the choir sang. Later, they taught the congregation some beautiful call and response songs, and also how to sing in a round. It was balm for the soul. The evening closed with Compline. Do you remember Compline? I prayed it with you every night that you were in the hospital, praying for both you and the nurses who worked the overnight shift. There are two prayers that I especially love, and I will share them below.

“Keep watch dear Lord, for those who work, or watch, or weep this night, and give your angels charge over those who sleep. Tend the sick, Lord Christ; give rest to the weary, bless the dying, soothe the suffering, pity the afflicted, shield the joyous; and all for your love’s sake. Amen. ”

The prayer that directly follow this one I always prayed for the doctors and nurses who were on call.

“O God, your unfailing providence sustains the world we live in and the life we live: watch over those, both night and day, who work while others sleep, and grant that we may never forget that our common life depends upon each other’s toil; through Jesus Christ our Lord, Amen.”

Ravi, every night I still pray for the doctors and nurses who cared for you at Masonic Children’s Hospital. I mention them all by name is hope that our Savior hears me prayer. I am undyingly grateful for all the tender care that they gave you. So many of them came to your funeral. We still receive the occasional note from them, and the dreamcatcher that they made in your memory still hangs on our wall, directly above the pictures we have of you. My love, you are not forgotten.

At the close of the service, Joy blessed a box full of candles for us to take out into the world, to use at a vigil of our choice. The world is full of darkness, but we carry these candles bravely, and our prayers waft upwards like incense. Our light and our voices will not be stilled. At the close of Compline, Daddy and I went downstairs to visit you. We noticed, by looking on the other dates in the columbarium, that you are the youngest person in the room, by a lot. This is a startling difference to the church where I grew up, St Paul’s. That church is older than St. Clement’s and there are many tombstones there for children who did not live past the age of 5. After public health grew and vaccines became available, there were much fewer childhood graves. I worry today because many people have a short view of history and are not having their children receive lifesaving vaccines. As you well know, Ravi, I am a proud autism mama and I vaccinate. You and Mercury did not fall prey to routine childhood illnesses. I wish that there was a vaccine that could have stopped your cancer in its tracks. Alas, there was not one. We fought osteosarcoma with the best of what medicine had to offer, but too often it was with medicines that were 40 years out of date. For this reason, I am starting to view myself not only as an autism advocate but also an osteosarcoma advocate. I am sensing a new calling as I write, and pray, and read. I am not yet certain where this calling will lead me, but I am open to the voice of the Spirit to guide me. You did not fight alone, Ravi. You can rest in eternal peace now, but I will continue to advocate, write, and pray for better outcomes for those with autism and those with rare cancers. I am starting to meet other mamas who are on a similar journey. We are small but mighty.

Ravi, I miss you. I love you forever. Mom.