Buses, Communication Devices and Boo Bears, Oh my!

Mr. Boo went back to physical school on Monday. He was sleepy when I got him up, but he saw the bus and headed out the door without a backward glance. Now three days in, he has his routine down pat. He leaves at 8:55 am and comes home at 4:15 pm, tired but happy. Gloria is a bit shocked not to have her buddy home all day, but has learned to wait for the bus and alerts me when it pulls up. Most excitingly of all, Boo got a new communication device and it lets him speak in complete sentences. So far he has been asking for gummi bears, gatorade, goldfish crackers and trips to Taco Bell. I have been happily complying. After school, like many teens, he just wants to chill in his room with his device and listen to the radio. He brought home an interesting art project. It is made up various bright colors of string and looks like a lightning bolt. It is titled lightning. I wonder if this is how a seizure feels in his brain. The good news is that he has been seizure free for over three and a half months! I am getting used to having some time to myself. Boo and I have been practically joined at the hip for the last eleven months. It seems odd that if I want to practice piano or go for a run, I don’t have to plan it out in advance and ask for Robert to cover for me. Due to Boo’s medical needs, I really can’t take a job outside the house(and I have at least 32 hours of work a week with him anyway) but I would like to do some volunteer work when it is safe. Two things that I have thought of would be either helping teach a literacy class or rocking infants in the NICU. One of these jobs appeals to my teacher side, the other one appeals to my mom side. If there is heaven, it will be a place where I will find all the dogs that I have loved and lost, and full of infants to rock. It will be a place where seizures are non existent. It will be a place of hope and love. In the meantime, I will just focus on my little community around me and try to create a little heaven on earth. Be good humans, peace y’all.

Author: snort262

I am a wife, mom, long distance runner and fierce autism advocate. My background is in education. Currently, I am a nanny, a tutor, and an autism consultant.

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