To say the least, Mr. Boo had a very good day yesterday. Alissa came and picked us up and took us to Special Olympics bowling. Due to Covid and my spinal fusion in 2019, we have not bowled since Boo was 16. He was clearly happy to be back in the bowling alley and likes his new team, the South Region Stars. This is a team of young adults and their parents, and he fit right in. He and I bowled two games, decided we were a bit rusty, but definitely could feel our skills starting to come back. After we were done, he made it clear that he was hungry, and we swung by McDonalds to get him lunch. At home we ate and hung out. Both Alissa and I needed to get some groceries, so with Robert, we all piled into the car. Once there, to our great joy, we found that the Caroline Cart was back! Though Boo can walk nicely beside me in the store and help select groceries, he loves riding in the cart. It makes him feel like a king. He was ear to ear smiles as we picked out our groceries. On the way home, we passed Taco Bell and stopped by to pick up his beloved Freezie. Once home, we put away groceries and then Robert and I took him for a walk. In short, it was a very good day.
I am hoping that the coming week is also good for Boo, or at least not traumatic. On Monday he has a sedated MRI to look at his scoliosis and possibly tethered spine. On Tuesday, he has yet another Covid swab. On Thursday morning, we check into Gillette Children’s for at least 24 hours for a video EEG. He has never had an EEG lasting more than an hour, and I am a bit nervous. I will stay with him the entire time, and Robert and Alissa will be in and out, providing backup for me, entertainment for him, and non-hospital food. With all of these medical appointments, he only gets to go to school for two days next week.
Thank you all for your prayers and best wishes these past few weeks. Boo has bounced back remarkably from his scary night at the ER. He is happy and busy in his world of school, bowling, walks, friends, and his beloved Sam. I will keep you posted about our medical appointments. Peace out and be good humans. Harriet.