Brief Update

Hello, all. Thank you so much for the birthday wishes. We had a lovely, quiet day at home. Ravi spent all last week in the hospital, as he will this week. On Monday they gave him Methotrexate. The rest of the week they pumped him full of fluids and measured his Ph. He had to have less than 0.1 in his system in order to go home. This number was not hit until Saturday morning. Robert spent Friday night at the hospital and let me go home, as I had not been off of floor 5 since Monday morning and was going stir crazy. It was such a blessing to be in my own home, eating my own food, drinking coffee from my coffee maker and being surrounded by my pets. The dogs and the cat had a lot to talk about.

Saturday morning, I picked Robert and Ravi up from the hospital. Ravi was so happy to be home. His appetite was good. He is loving both salty and savorty foods. Special thanks to Dan and Robyn who brought over take out from Hong Kong Noodle. Ravi discovered that he loves pot stickers. Who doesn’t. He also had no problem sampling different dishes of beef, chicken and tofu with a variety of veggies.

We are back to Monday again and I am packing our hospital bag. We check in at the lab at 11am, get our levels checked and then go down to floor 5 to get another dose of Methotrexate. This week we will be much more vigilant about getting Ravi up and out of bed and workiing with the PT team. He lost a lot of strength last week and took a bad fall at home. Right now his poor face looks like he was in a bar room brawl. But, he is still happy and smiling. This young man amazes me every day.

We are allowed to have visitors, to if anyone wants to drop by and say hi, we are at the Children’s Masonic Hospital on Riverside Ave. Check in at the front desk and they will direct you where to go. Hopefully, the methotrexate will leave his system faster this time and he can go home before Saturday. Send him good vibes, prayers, and that his levels are below 0.1. Thank you all for your continued support and love. Be good humans.

Author: snort262

I am a wife, mom, long distance runner and fierce autism advocate. My background is in education. Currently, I am a nanny, a tutor, and an autism consultant.

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