Oh, my poor neglected blog! I have so many thoughts, and so little time to put them into words. Ravi and I are about to check back into Masonic Children’s Hospital for the next 2 days for 2 rounds of chemo. If all goes well, he will be discharged on Thursday and can stay home for 2 weeks, except going in for labs. Mercury is coming home from OSU for spring break on Friday and I am so excited to see them.
Since we last chatted, Ravi is now the owner of a g-tube. He was unable to stay hydrated or nourished simply by eating by mouth. 10 days ago, he had surgery and had the g tube placed. From the outside, it just looks like a little button on his abdomen. It is attached to a tube that goes directly into this stomach. Through this tube I can give him, meds, hydration, and high calorie formula. He has not really gained any weight, but he has not lost any weight, either so I will call this a win.
Through all of this hardship, Ravi has been an absolute trooper. He does not feel well a lot of the time, he has very little energy, but he is still smiling. He still loves to chat with Sam, watch PBS kids on his iPad, or listen to music. In the hospital, he loves music therapy and PT. We have visits from Inka, the therapy dog, and the lovely practitioners from Healing Touch. Music therapy put an electric piano in our room, so I can still practice my beloved Bach. Ravi seems to relax when I practice piano, as my music has been the soundtrack to his days almost all of his life. Music is good therapy for both of us.
Thank you to all for your prayers. good vibes, visits, presents of silly hats and socks, and for just being you. You have carried us through some dark times. Be good humans and we will chat again soon.
Harriet's Hedgehogs and Autism Advocacy 