Hi from Ravi! We are on week 2 of our second week at home. He had labs today and they looked pretty good. Okay, for a normal kid they would look terrible, but for a chemo kid they look okay! To our surprise, Nurse Jill told us she did not expect anything to dip in the next two days and we do not have to come in for labs this Thursday. We are free as birds until Monday morning, when we check into the hospital for labs and then methotrexate. He will receive his infusion on Monday, but it usually takes 4 or 5 days for all the toxins to leave the system, so he will probably come home on Friday night or Saturday morning. The following week is another round of methotrexate, followed the next week by Cisplatin and what is familiarly called, “Red Devil”. That should be the last time he has Cisplatin. By the end of May, we should be down to just 2 chemo drugs.
I was happy to see that Ravi had put on a few pounds in the last week. He is still gaunt but looking better. He also has more energy. This is probably because he has not had chemo in a week, and the calories give him more energy. School is on spring break this week, so there is no hope of getting to school during this respite. We may venture out for some walks this week. A freak April 1 snowstorm blanketed us with 8 inches on snow over the weekend, and then promptly melted. Ice has cleared off the sidewalks, so I think it is safe to go for walk. If he is feeling super energetic this weekend, we can bring out his adaptive bike.
Not a whole lot to report just now, which is fine with us. We like the peace and quiet of home. We have added a kitty to our menagerie and Nikki is fitting in just fine. He delights Ravi with his antics, but also loves to cuddle up and purr. Keep in touch and we will keep you posted. Be good humans and go Team Ravi!
Harriet's Hedgehogs and Autism Advocacy 