Upcoming

Hello, FOB, or Friends of Boo! Ravi has a lot on his calendar. We spent part of July 4 in the ED as his gtube came out. He got a temporary tube to hold him through the weekend and a shiny new tube put in yesterday at clinic. Somehow, no one had told us that gtubes are supposed to be replaced every 3 months! This gtube had been in for nearly a year! Live and learn.

Yesterday was bittersweet. We said goodbye to our beloved oncologist, Dr. Emily Greengard. She has been Ravi’s head doctor since December 2022. She is kind, patient, empathetic, and in short, brilliant. Thought we know we are being left in good hands as she leaves for a new job in North Carolina, she will be deeply missed.

We are hoping for this to be a quiet week. Ravi has no more appointments, unless he needs extra fluids or labs. Next week he begins radiation treatment. This will begin on July 17. He will have a dose every other day for 10 days. The radiation itself should only take about 10 minutes. Most of the time will be spent either sedating him or waiting for him to wake up from the sedation. Fortunately, his treatments are early in the morning so he will not have to fast for very long. Fasting Boos are hangry Boos.

Once radiation is complete, he has about 10 days to rest and recover. Then, we are heading to Duluth to grant Ravi’s wish. He loves large bodies of water, beaches, boats, and trains. We are staying at a hotel with a pool and hot tub. He has been telling me for months that he wants to go swimming. We will be taking a pizza and train ride. Basically, this is a 2.5-hour scenic train ride where one admires the North Shore and eats pizza! We are also taking a boat tour around the harbor. We are so excited for Ravi to finally get his wish. Thank you so much to Kathy of Nick’s Wish who is making this happen. When we return from our trip Ravi is going to start music therapy. We also are hoping for some long walks, some rides on his adaptive bike and the opportunity to eat some tasty food.

Thank you all so much for following us and giving your unending support. Pray for Ravi as he undergoes radiation. Be good humans and we will be in touch. Peace.

Author: snort262

I am a wife, mom, long distance runner and fierce autism advocate. My background is in education. Currently, I am a paraprofessional at a Title One school, a fighter for kindness and social justice, and a fervent animal lover. View all posts by snort262