Greetings from room 5129

Hello, all. Ravi has been in hospital since last Thursday. He admitted with an eye infection, vomiting and rapid weight loss. As of today, Monday, his eye is looking much better, and he is in a great mood. We still have no idea why he is vomiting up everything from Pedialyte to formula. He cannot swallow anything at all, and nutrition taken in via the g tube comes right back up. Tomorrow is a day for exploration. He will be sedated, and a camera and a scope sent down his throat into his stomach. The team will look for inflammation, stricture, and anything that might need a biopsy. He is starting to get medicine now to block stomach acid and hopefully make him hungrier and allow the food to stay down. He will go on TPN via his port tonight, just to get some much-needed calories into him. For a guy who has spent most of the last week throwing up, he is in an extremely good mood. He is cooperative with the doctors, loves his nurses and wants lots of cuddles with mom and dad. He is using his AAC, Sam, to chat up a storm. We are hoping and praying that tomorrow will bring us some answers and show us a route to bring him home.

I had mentioned earlier that I had a big reveal coming up. Last Friday, Ravi’s web page at the Osteosarcoma Institute went live. Here is his website. You can also get to his website from my Facebook page. If you want to learn more about Osteosarcoma, the website below is the perfect place to find things out.

Donate – In Honor of Ravi Herndon

I am teaming up with OSI to fight for better treatments and outcomes for osteosarcoma patients. I have spent the past few months training for the Twin Cities Marathon on October 6. I am running this race to raise money for OSI and to bring greater awareness to pediatric bone cancer. The treatments for osteosarcoma have not advanced in over 40 years. OSI is trying to change this. My job right now is to care for Ravi and put the final touches on my marathon training. Your job is to hold us in prayer, and if you can, donate to OSI. If nothing else, check out the webpage which is all things, Ravi!

This is a very stressful time for Ravi and those who love him. Thank you to all who reach out and hold us in prayer and white light. I hope I have some more answers to give you tomorrow. In the meantime, be good humans and we will be in touch. Peace, Harriet.