Tag: faith

All Souls Day

Dear Ravi,

We celebrated you and all the saints and souls who have gone before you at church on Sunday evening. Joy had hung up pictures of all our parishioners and loved ones around the walls of the church. Your picture was on the right hand side of the church, or the eagle side as we say in TEC, near where I always sit. You were a few people up from my dear friend from EFM, Mary Fred. She also was treated for cancer at Mayo, which prolonged her life by two years, and then slipped away from us in hospice during the Covid shutdown. I imagine you and she are having a marvelous time in heaven. She is an amazing mom and advocate, and just a lot of fun.

The opening hymn on Sunday was I Sing a Song of the Saints of God. This was also the processional at your funeral. It has always been one of my favorite hymns, but hearing it now brings me to my knees. All Saints Day and All Souls Day are such a thin place. The veil between the living and the dead is feather thin on those days and flutters, letting us have peeks at each other. In my heart of hearts, I know that you are just on the other side of the veil, waiting for Daddy and me. After the service he and I went down to the chapel to visit you. Joy had lit a candle as a memorial for a baby who was born sleeping. Can you and Mary Fred keep an eye out for the baby? She was loved and wanted but slipped away in the womb. St Clements is planting on oak tree on our parish green for mothers who have lost babies and babies who were born sleeping. They will rest safely in the arms of this tree, instead of the arms of their mothers who grieve them.

I was at the church on Monday as part of the Gather Group. We were interviewing candidates interested in leading our neurodiverse worship services and teaching other churches how to make the neurodiverse feel welcome and church settings. This is a 5-year project funded by the Lily Foundation. Before the interviews began I slipped into the church. All the pictures were still hanging on the walls, keeping watch. Gently, I took your picture down and slid it into my interview folder so you could be with me during the decision process. In each candidate we met I wondered if they would pass the Ravi test. This was the test I gave to all of your PCAs. If they came to the house trying to impress me but paid little attention to you, we immediately wrote them off. If they came in the house and you instantly took a shine to them, I knew that they were a good person and could be trusted. Ravi, you had an excellent sense of people and their vibrations, and you never once led me wrong. Some of these candidates I could see you taking an instant like to them. Several of them were autistic and I promptly felt comfortable with them. Others were well intentioned but did not seem to have the calling for this particular ministry. After nearly 5 hours of talking to people our panel of interviewers went home. We were all exhausted. Each candidate brought their own wave of nervous anticipation and anxiety into the room, and it was hard not to let it rub off on us. We reconvene this evening, talk to two more candidates and then will do some serious reflection over a meal. Candidates in whom we are interested will be called back for another interview and a chance to meet other members of the church, particularly the ones they will be serving. May God be with us as we discern who or whom will be taking on this new ministry.

Ravi, it is 5 am and I am writing to you. I never do seem able to keep normal work hours. I can wake up from a sound sleep with an idea in my head and I have to write to you to get it out. I have been talking to a few publishers for your book. I have decided not to go the route of self publishing. It seems to be a very expensive vanity project and not how I want to project your story. I am putting together a list of potential agents and submitting them to Abbey, our editor. This will be a long process but hopefully a fruitful one. If nothing else, we always have the blog and our band of faithful followers, for whom I am ever grateful.

It’s still dark outside, Ravi. I fed the animals and now they are asleep around me. When it gets light outside, I will take the dogs for a walk. Due to back problems, I am not running much these days, but the dogs and I get in at least 5 miles a day of walking. We had a good walk before the interview yesterday, as I knew that I had to get my wiggles out. Fortunately, if I have notes to take and a few good fidgets on hand, I can generally stay seated and focused. You would be proud of me; I even tried to sit like a neurotypical person! It was hard! Chairs are overrated, but interviewees get nervous if I start pacing the floor, which is my favorite way to think.

I miss our walks, Ravi. I miss your laugh and your smile. I knew that you are with Mary Fred and a host of other souls, just on the other side of the veil, but I still miss you. One day, we will all be together again. No cancer, no pain, no fear. Can you pray for your Uncle Rob? You and God know why. He is a very good human and much loved by his family. Go in peace Ravi, to love and serve the Lord. Love, Mom.

October 19, 2024

Dear Ravi,

This was the date that St Clement’s prayed and sang you into heaven. It was a beautiful and heart-breaking service. I go back and forth about which was the worst day of my life. Was it the day you died in my arms, or the day we laid you to rest? I don’t know.

I went to church this morning hoping to feel you. For some reason my hands and feet were freezing. I felt cold all over. Gradually, the sun crept into the church, and as Elizabeth preached, I found myself covered in sunshine. It did not help that much with the cold, but it did make me feel better. So did the prayers, songs, and breaking of the bread. 1782 Ashland Avenue is my home, but the parish, and the chapel where you reside is my home away from home. It is where I seek God, I search for you, where I am joined in fellowship by those I care for deeply.

I went to the chapel after church but could not stay long to talk to you. It seems that there was a meeting about to happen there. People were straggling in, talking to each other, looking at the phones, and I could not really sense you. I put my hand on the door that leads to your niche and offered you a brief blessing. Then, I hurried out until the sunshine.

Yesterday, your daddy and I joined nearly 8 million people across the country in a No Kings March and Rally. It was beautiful, peaceful, and life affirming. Though I am exhausted today, I am very happy that I went. There were speeches, chants, signs, songs, and costumes galore. We listened to the songs, speeches and prayers before marching the streets with thousands of likeminded people. Democracy raised her voice yesterday, Ravi, and was heard. You voted for democracy, and you did not vote in vain. The pendulum will swing the other direction, I just don’t know when. The shutdown drags on, and millions of Americans are worried about health insurance, jobs, feeding their families, the list goes on. But yesterday was a day of hope.

Daddy was hoping to go soaring today, but the winds are too gusty. Instead, we will walk the dogs and remember you. Your two remembrance trees in the backyard are thriving. We put bunny barriers around the trunks to protect them from the ever-hungry rabbits. I will not have bunnies eating your trees! These trees are destined to grow and blossom in your memory. We will protect them at all costs.

My dear son, I miss you deeply. I sensed you yesterday morning at sunrise as clouds were scudding across the newly awakened sky. Your name is on my lips when I arise and when I take my rest. Please offer up a prayer for your sibling, Mercury, I fear that they are suffering economic hardship and potential danger. I want them to know that they can always return home. Our door is open. It may take a miracle to bring Mercury home, but I am always on the lookout for miracles. I also believe that miracles take faith and hard work. In your memory, my love, I continue to work and pray. Ravi, you are in my heart forever. Love, Mom.

Childhood Cancer Awareness Month

Dear Ravi,

I have to admit, I am tapped out. It is only halfway through the month, and I am exhausted. Running the race 2 weekend ago for you was wonderful. I am looking forward to running another 5km, Brave Like Gabe, this weekend. Together, lots of runners are raising money for better outcomes for rare cancers, including osteosarcoma. But more and more people want to hear the story of your cancer journey. Ravi my love, I can happily talk about your life all day long, but I really don’t want to write or chat about the end of your life. We are coming up on the one-year anniversary of your passing and I am too raw, too tired, to share. I am digging deep and doing something unusual for me. I am telling people no. Not forever, but no for right now. Maybe in another year or two I can share your cancer story, but right now I am just trying to put one foot in front of the other.

On a different note, if the church seemed more lively than usual yesterday, there was a good reason! It was the first day of Sunday School. I am happily co-teaching a class of 8 girls, ages 5 through 10. They have amazing enthusiasm and energy. Being around them is a joy. You loved school so I imagine that the noise and clamor of young learners made your heart expand several sizes. St Clement’s is very much alive. After I taught Sunday School I went upstairs for the 10:30 service. Joy preached, using one of your favorite children’s stories, The Runaway Bunny, and it was exactly what I needed to hear. You cannot outrun my love, on either side of the grave, and we cannot outrun the love of God. After the service I retreated downstairs to visit you. Sunday school and the service had taken all of my spoons. It was a relief just to sit in the chapel, relax, and talk to you. Eventually, I emerged and made my way home. Dad and I took several long dog walks. We are thinking of planting a tree in your honor next month. I don’t know what type of tree yet; I will go to the nursery and see which tree calls to me.

Ravi, you visit me so often in my dreams. Interestingly, you do not have Sam, or any other AAC, nor do you need mouth words. You seem perfectly content and happy. There must be other ways of communicating in heaven that we folk on earth cannot even fathom. Please look out for our friends who are going through chemo. You know how hard that journey is. We can both support them in prayer. Sometimes, prayer is all I have to give.

So, this week and the rest of the month is going to be one step at a time. I will run a race for you. I will blog about you. I will spend time with people who knew and loved you. I will try to take care of myself and your dad. I will pray that Mercury will one day reach out. Time is weird. Sometimes, it feels like I haven’t seen you in forever, other times, the months pass in the blink of an eye. Maybe that makes more sense in heaven, too. Not a lot in the world makes sense right now, but my love for you continues forever. Love, Mom.

Ten Months

Dear Ravi,

It has been ten months since you left us. We miss you always and forever. Your daddy and I have taken to walking over to St Clement’s in the evening and sitting on the green. This makes us feel close to you. Before we leave, we always tie a ribbon on the prayer trellis for you and Mercury. Neither of you are ever far from our hearts. The prayer trellis began during Covid. Joy strung up clothes lines around the green, left out a box of ribbons, and invited passersby to offer up a prayer and tie a ribbon on the line. By the end of the pandemic, the green was completely surrounded in a wreath of ribbons. Prayer is a powerful thing. It brings us together when we are feeling lost and alone.

I went to church yesterday and since then have been reflecting on the many different Greek words for love. Love that parents and children have for one another is called storge. Philos is brotherly love. Yesterday in church, I saw a beautiful example of agape, selfless love. I will explain. There is an older woman in a parish who is suffering either from dementia or Alzheimer’s. She is brought to church every Sunday by another elderly woman, maybe a sister or a close friend? She sits near the front of the church and Joy brings the Eucharist to her pew as she is too feeble to walk very far. I was sitting a few rows behind her with Roberta and some choir friends. Joy was offering up the post-Communion prayer. Suddenly, this woman stood up and approached Joy at the altar. Joy did not skip a beat. She continued the prayer and held out her arms to the woman. She embraced her in a caring hug. Elizabeth seamlessly picked up the service where Joy had left off as Joy led this woman back to her pew. Gently, the two of them sat down together and the woman leaned against Joy, trusting as a child, and Joy put her arm over her shoulders and talked softly to her. The rest of the clergy recessed to the back of the church, singing a final hymn. Joy continued to sit there, holding this woman in a soft embrace. They sat there through the organ postlude and as others left the church, talking softly. Truly, Joy was a shepherd, ministering to her flock, and this one sweet lamb in particular who needed pastoral care and the knowledge that she too was loved, included, and accepted. The world must be a very scary place for her, but to her, Joy was a safe person to turn to. This, Ravi, is agape, in it’s truest form. There are many other Greek words for love, but agape and storge are the ones that are foremost in my mind.

I am starting my new job as a direct care support worker tomorrow and I think it will be a really good fit. The young woman whom I will be helping is also a graduate of St. Kate’s, just like Alissa and Lauren. Speaking of St. Kate’s, I had a great dream about you the other night. You were hanging out with the St. Kate’s basketball team, as was one of your preferred activities when Alissa was in school. In the dream you were laughing and having a wonderful time. I woke up smiling. I hope that there are basketball games in heaven. Right now, Nikik is perched on the back of my chair and the dogs are at my feet. They had good walks and runs this morning. I will run over to the church tomorrow, to say hi to you and place two more ribbons in the trellis, sealed with kisses. Love you to the moon and back. Mom.

Ravi Speaks

Dear Ravi,

I heard you loud and clear this morning. I went to the 10:30 service because I wanted music more than I wanted quiet meditation. I got that and more. There were two very animated toddlers at the service. I love the pitter patter of little feet during Joy’s sermon and squeals of joy from toddler lips. These sounds make the church feel so much more alive!

After the service, I had half an hour before our Sunday School orientation and meeting. I normally skip coffee hour because I don’t know that many people at the 10:30 service, and by nature, I am very shy. So, I slipped down to the chapel/columbarium to visit you. I checked in with you, cried a little bit, and was trying to determine what to do next. Suddenly, and clearly, I heard your voice in my mind. You said, “Mom, you need to hang out with the living, not among the dead.” I whipped around to see where this voice had come from, but you were gone as suddenly as you had come in. So, I blew you a kiss and headed upstairs. I got some coffee and then did see a few familiar faces. I happily chatted with people until it was time to go to the basement for our meeting.

The meeting was a success. There are 6 of us who want to be involved, plus Elizabeth. I agreed to help out every Sunday, except for marathon Sunday, when I have no way to get to the church. Also, this will set a rhythm for my week. I would much rather be with the youth of our church every Sunday, rather than once or twice a month. I have also been asked to be on the Gather steering committee. This group will design and run our Autism/sensory friendly Sundays once a month. I have yet to learn what my role in the committee will be, but I am very excited both the be a Sunday School teacher and on the Gather board. Sometime in the fall, I am also giving a talk about Autism and Autism advocacy at the adult forum.

Tuesday is your dad and my 24th wedding anniversary. Because you came a bit earlier than expected, we have never celebrated an anniversary without you. I don’t yet know what we are going to do, but you will be part of this day, just like you always have been. We will stop by the church to talk to you and let you know that you are still a beloved child of God and of our family.

This will be a busy week. I return to therapy on Monday after Kathy was out on medical leave for three weeks. I am helping a friend with some legal issues. On Wednesday I begin my work as a direct support provider. I am only working 2 shifts a week, for 9 hours each. This will hopefully make me feel useful, gain me some income, but also leave much time for other pursuits, such a writing advocacy, and running. I am running again, and it feels good, but I am very slow. Running provides a release for me and also helps me to feel close to you. So, thank you for reminding me of the outside world. I have a lot of work to do among the living, even while I honor the dead. How I wish that you were not part of the non-living world. I miss you, tons. This fall, the normally quiet basement of the church will fill up with the good noise of children. It may sound like happy chaos, but that is just what you loved. We are setting up the classroom to be sensory and autism friendly. I think you will approve. You are my first thought when I awake in the morning and my last thought as I fall asleep at night. Love you to the moon and back. Mom.

Hello, my dear Cardinal

Dear Ravi,

Your daddy and I are back from Virginia and are on the hunt for more cardinals. Roberta has seen many of them on her photography retreat to Canada. Maybe it is too hot in Minnesota, and you fled north?

Generally, I attend the 8:15 church service, but this morning I felt called to attend the 10:30 service which has music. The choir sang many of my favorite hymns. As you know, St Clement’s is old. We do not have air conditioning in the church. All windows were open to catch even the faintest whiff of a breeze, and everyone had a program or hand fan at the ready. None the less, we all melted. At the final note of the postlude, there was a mass stampede into the air-conditioned parish hall! After a lovely visit with our oldest parishioner, Pearl, who was born in 1926, I retreated to the much cooler chapel, columbarium. For me, the chapel is both a place of respite and grief. I can talk and visit to you, but there is never a time when the tears do not flow. I miss so much, my son. I am now at home with the pets, and your daddy is out at the airfield, hopefully not baking.

Yesterday, your daddy and I had an amazing Teams meeting with a lovely lady named Ruth. She lives in the UK, and lost her son Fergus to osteosarcoma in 2022, 10 days shy of his 13th birthday. He endured the exact type of chemotherapy that you did. Ruth is collecting these stories and interviews of parents and caretakers to try and find a common thread in the various stories of your disease. As you know, the treatment regime for osteosarcoma is at least 40 years old and barbaric. There are fewer than 900 cases a year in the US and Ruth says there are less than 30 cases a year in England. Osteosarcoma is rare, and since it is rare, it does not get much monetary help, support, or money for clinical trials. Ruth, Jenn, Jonn, and your daddy and I agree on this point. There is a desperate need for better treatments and outcomes. Just because this disease is rare does not make it any less important to treat.

The Rev. Elizabeth has asked me to be on the steering committee of the Gather group, the 5 year plan we have to make our church more inclusive and autism/sensory friendly. I am honored to be on this committee. In the early fall, I will be presenting an Autism 101 class at the adult forum, for those who want to learn how to make our church more welcoming. I am also teaching a sensory friendly Sunday School class for 5 to 10 year olds. I am very excited about both of those things.

Making our world more autism friendly has been my calling since 2004, when you were diagnosed. I blog, I speak, I will teach. I am also feeling a faint call from another direction. I want to bring more awareness to osteosarcoma. As I was telling Roberta, it is easy for me to write about you. I can happily do that all day long. It is much more difficult for me to use mouth words to describe you and the last 22 months of your life. I can do it, but it leaves both me and your daddy gutted and wrecked for the rest of the day. I have nothing but sheer admiration for the Ruths, Jenns, and Johns of this world who delve into the complex and tragic world of osteosarcoma on a daily basis. I want to do this for you, alongside my autism work, but I will have to pace myself and measure out my spoons carefully. It has been less than 10 months since you left us and I am still very raw.

Right now, the dogs and cat are dozing at my feet. I have the AC on full blast. The house is very quiet. I miss your noise and your energy. I am waiting for the temperature to drop a bit before I go for a run/walk. I have the race I am running for your coming up in 6 weeks, and I am excited about it. If you are hanging out with Dave Evans in heaven, please give him a hug from me. He was a great guy and deeply missed. I love you to the moon and back, Ravi. Mom.

July??

Dear Ravi,

How is it already July? I blinked and the calendar moved. We spent the 4th July very quietly, as we do not believe that our country has anything to celebrate while our citizens and our immigrants are being oppressed or disappeared. The afternoon of the 4th, I joined Women Against Military Madness on the corner of Summit and Snelling. We chanted and prayed for freedom for Palestine, freedom from war, and freedom for those who are oppressed. It felt good to join people of like minds and speak out freely. We had lots of honks and peace signs from passersby. Luckily, we were in the shade because the heat was oppressive. I will return to this group of peacekeepers every Friday from 4 to 5 pm.

I may have mentioned before, July is both Sarcoma awareness month and child loss month. I am on social media only sporadically and am trying not to doom scroll. It is a slippery slope. Last Sunday, I was happy to leave my phone at home and go to church. I went to the 10:30 service instead of the 8:15, as I was in the mood for music. What a great day to go, the choir sang all my favorite hymns. Despite all the windows being open, the church was stuffy and hot. It was a relief to go down and visit you in the chapel. I sat by niche and talked to you for a long time. We could hear the muffled conversations from coffee hour upstairs, people coming and going. The church is a lively place on Sunday, a good place to be. Your daddy and I will come over later this week, when the church is open and visit you. We walked by on Sunday evening, but it was all locked up.

Ravi, I am at a crossroads. I am feeling the urge to return to the working world. I don’t want to work full time, but 20 to 25 hours a week would be fine. I had a preliminary interview for a tutoring job this morning, and have an interview with Visiting Angels, as caretaking group tomorrow afternoon. What I really want to do is to sell my book and be an author, but I need something to pay the bills in the interim. We shall see what happens. I am not taking a job just to have a job, a job has to have meaning to me, and a decent rate of pay.

The exciting news is that Daddy and I are going to Virginia next week. We are flying into Richmond and spending 3 days with April and Rick and also seeing a childhood friend. Then, we will go see Etta and Denny and family in Fredericksburg for 4 days. It is summer on a farm, and we will be busy. I think Daddy has already been conscripted to drive a tractor. I will slather him with sunscreen, put a big floppy hat on his head and hope that he does not wilt. We will also see Nancy and Red and celebrate the end of her treatment for breast cancer. The visit would not be complete without a stop by my alma mater. Don’t worry about the pets, Chris will take good care of them and the house while we are away.

I suppose you heard about the tragedy in Texas. Your daddy and I are heartbroken. So many people were swept away in the flood. I know that they are now dancing with Jesus, but their families want them back. We pray for peace and closure for those left behind.

I miss you, Boo Bear. I miss your smile and your laugh. I know that you are flying free. Friends chime in almost daily to give me cardinal reports. Sometimes, I see you when I am out and about with the dogs. Last night I saw lightening bugs, something I have not seen since I was a child. Are there lightening bugs in heaven? We went to Taco Bell for you last week, the first time we have been back since we lost you. I had a freezie in your memory. I smiled through the tears. Sweet boy, know that your mama loves and misses you. The Cardinal is the state bird in Virginia, so I will look for your there. Forever and ever, your loving mama. Harriet.

God speaks, God moves

Good morning friends. It is still dark outside, the birds are not singing yet, but my muse has a few things to say.

My memories of last October are spotty at best. Some images will never leave my mind. Other times, forgotten images come bubbling up. Today, I woke up with two very clear memories. The first involves the word columbarium. While Ravi was in hospice, my goal was to spend every moment with him. My focus was only on him. I adamantly refused to make any plans for after he passed, because he was still with us and I wanted to focus on the living Ravi for as long as I could.

Time wrinkles here. I think this happened a few days after his passing. I was sitting in my favorite chair, praying and meditating. The word, columbarium, suddenly bubbled up in my mind. I had never even thought about this word before. I grabbed my phone and texted Elizabeth, our associate rector. I asked her if St. Clements had a columbarium, and could Ravi find a home there. Immediately, she answered me. Yes, our church has a columbarium in the downstairs chapel and St. Clements would be proud to give Ravi a resting place there. Looking back on this, I realize me instincts, or my ability to listen to God were exactly right. There was no reason to plan for Ravi’s demise while he was still living. I just focused on him and let God sort out the details.

October 12, 2024, is a blur in our minds. Ravi had passed and Robert and I were shattered. One by one two by two, our friends came to sit with us, to hold us, to mourn with us. Our wonderful rector, Joy, was out of town that weekend. I did not know when she would be back, or if she knew about Ravi. On impulse, whim, called by God, I picked up my phone and texted her. All I said was, “Can you please come?” I hit send, and there was a knock at the door. It was Joy, who enfolded us in huge hugs and just sat with us and let us weep. I am completely convinced that she was sent to us by God at that exact moment.

Slowly, the memories bubble up from last fall, often in the form of dreams. I want to end with something I find curious and totally off subject. When I prepare a blog to be written, Word Press suggests tags to go along with it, to attract more readers. Sometimes, the tags make sense, other times they are way off base. Whenever I talk about God, which is a lot, Word Press suggests that I tag this as fiction. If I even mention running, such as in my last post, Word Press wants to tag it as running, fitness, marathons. Hmmm. Yesterday, I wrote about Finish the Run 5km. Word Press adamantly wanted to tag this as a marathon. I have run plenty of 5kms and plenty of marathons. They are NOT the same thing. Ah well, AI, what can I say? Once again, thanks for reading. Be good humans, look for Ravi when you see cardinals or butterflies. Peace, Harriet.

Say His Name

Friends, Mother’s Day is quickly approaching, and I am feeling some fear and dread. I have celebrated this day as a mother since 2003, when Ravi was an infant. I absolutely loved being a mom. I was even happier in 2004 when Stirling joined our merry little band. This year, I am at something of a loss. We never made a huge deal out of Mother’s Day, other than a card and some hugs, no big productions or a fancy mimosa breakfast. Usually, we just spent the day as a family, hanging out and having fun. I really miss that. Ravi is gone and Stirling is estranged. I have no one to call me mom.

So, what I am going to do instead of crawl under a rock? (Trust me, this is tempting.) I sat down and though of the women I think most highly of. The women who nurtured me, loved me, pushed me, believed in me. I picked out a pretty card for each one and wrote them a letter of gratitude. I put the letters in the mail. Still, Sunday looms in front of me. So, I will be attending church with a dear friend. After the service, I will go to the chapel/columbarium and chat with Ravi for a while. I know that his spirit is not in that space. When Joy interred his urn she told us, “Ravi is not here.” Ravi spirit is loose and free in the world. He is no longer shackled by cancer, epilepsy, or pain. I go to the chapel frequently because a tiny part of him is there, and it is a good space to meditate, cry, and pray. I will spend the time that I need in the chapel and then return home. I will take the dogs for walks or runs. Later, Robert and I will go to Menards to pick out flowers and we will plant them in the backyard.

So, here is my request to you this Sunday. Please say his name. His name is Ravi. People are often afraid to say his name, thinking that it might upset us. No, we have suffered the greatest loss a parent can face. Saying his name will not hurt us. Saying his name tells us that you remember him too, and that he was loved greatly. Send your voice and your good will out into the universe. If you have a happy Ravi story, or even that he just made you smile. please feel free to share this on the blog, or on Facebook. Civilizations were built on stories. Families build their own stories. On Sunday, be a good human, say Ravi’s name for us. If you see a cardinal, or rainbow, or something else amazing, he is saying hello back to you. If he appears to you in a dream, know that he knew you were a good person, and he is popping in to say hi. As always, be good humans. The world is chaotic, but there is still good to be seen and shared. Peace, Harriet.

Dear Jesus,

About 5 months ago, my son Ravi arrived in heaven. He came rather suddenly on a Friday night. His family was not prepared for his departure, but he had outlasted his earthly body and was ready to leave it behind. If you are not certain how to recognize him, let me help. Ravi is about 6 feet tall, 2 inches. He has thick brown hair, with a bit of “chemo curl” and the most beautiful blue eyes. He was not wearing glasses when he left, but I doubt that he will need them in heaven. He has worn thick glasses since the age of 2 and a half. His tummy was not working very well when he left, even with the G/J tube, he could not take in any nutrients. This was very distressing to all of us. Now that he is in heaven, let me tell you what he loves to eat. His favorite drive through food is Taco Bell. Usually, he likes a large cherry freezie and a chicken quesadilla. If that does not work, a soft-shelled taco with beef and cheese can fix almost any problem. If he is in the mood for a sit-down meal, there are many options. He likes fried chicken and sweet tea from Canes. Carbonne’s has great pizza and cheesy bread with marinara sauce. Noodles from Noodles and Company is also a big hit. A turkey sub, from Subway with a side of chips and a drink is also a good choice. Though Ravi was always very skinny, he really does like to eat, and dining out with Alissa or Peter was one of his favorite things. For on the go snacks, gummi bears, Twizzlers, and goldfish crackers are always good.

On earth, Ravi had to take a lot of medicines, even before the cancer. After he was diagnosed, the medicines more than tripled. His daddy kept them all in a big med minder and made sure it was always filled and up to date. He had lots of timers set so he knew that Ravi was getting the right medicine at the right time. We know that there are not seizures or cancer in heaven, so guess you don’t need to worry about that.

Ravi has an AAC named Sam. It goes everywhere with him since he does not use mouth words. Can he use mouth words now? Sam is still here with me, on Ravi’s dresser. I miss Sam and I really miss his owner. I would love to hear Ravi’s voice. I can still hear his laugh. He has the best laugh. Sometimes, it is a high-pitched cackle, other times, it is a low, rumbling belly laugh. He has a very good sense of the absurd, and sometimes things just catch his fancy and he just giggles. I would love to know what goes on in his head.

Ravi loves to go for rides in my Subaru, Forester. His favorite stations are Cities 97, The Current, and the Classical Station. He can choose his own stations and has very definite ideas about what constitutes good music. I have entire playlists on Spotify that we set up when he was in the hospital. I have not listened to them in nearly 5 months. Sometimes, a favorite song will come on the radio and the memories it evokes almost takes me to my knees. Music is such a powerful trigger, and it can evoke both beauty and pain.

When Ravi arrived, was Rosie there to meet him? She was his best buddy for 12 years. Things were always okay in Ravi’s world when Rosie was around. Though she is an amazing service dog, she will try to eat his treats. He likes to share his treats, so it is probably okay. They have a pretty good system worked out.

Jesus, please let Ravi know that we love and miss him deeply. Things are not the same without him. I am still trying to publish his book, so more people will know his story. I am still pushing for better funding and outcomes for osteosarcoma. I did not go to church yesterday, as the memories were too strong. I did take long dog walks. The snow is melting, and the weather is getting warmer. Ravi loves to go for walks and when he is healthy, which he is now, he can go for miles. Sometimes, these walks end us up at Subway, for a sandwich, or Super America for a drink and a treat. Sometimes, they wander us across campus to look at the college kids on the quad, sometimes, we like to go to Belmont Park. Spring is coming here, and I have two baby trees that I plan to plant in the backyard in Ravi’s memory. April has also given me lots of bulbs to plant. I want to make our backyard a sanctuary for the bees and the birds.

Jesus, you know better how to care for Ravi than I ever did, but this is just a list of suggestions for his care and feeding. Tell him how much we love him and that someday, we will all be together again. In the meantime, I will continue to advocate for him. For everyone out there in this crazy world, keep the faith, be good humans, and I will be in touch. Harriet.