The Algorithm

Dear Ravi,

Sometimes I really hate social media. As soon as you were diagnosed, my feed was flooded with cancer information, some of it useful, most of it laughably inaccurate. Newsflash: coconuts do not cure osteosarcoma. If a clinic does not accept any insurance, they are bogus. Your autism and your cancer were not caused by vaccinations.

In the 6 days following your Uncle Rob’s death, Facebook has inundated me with hospice and grief videos. Some are fitting, some are outrageous. I am still mad at social media for sending me hospice videos a year before we ever considered it for you. I guess they figured a kid with stage IV osteosarcoma could not last forever, so I should take this as an omen. Instead, I snoozed these videos for 30 days, again and again and we fought harder. Gradually, over the past 2 years these videos have thinned out a bit. I see more things that I like; such as Aussies being silly, cats being snarky, and goats doing yoga. You know, the things that bring a smile to my face. I am tempted to either throw my phone out the window or sage the living room. I did snooze St. Jude’s today because I think they are a cult. They may not charge a cent for treatment, but their hospital only has 70 beds available, they cherry pick who they will treat, and they will not let patients or parents seek a second opinion. These are all deal breakers for me. You got excellent care at Masonic Children’s and Mayo and I have no regrets. I also have a lifetime supply of return address stickers because a family member sent them a donation over 4 years ago and they refuse to leave me alone. My money will always go to The Osteosarcoma Institute. Period.

It is a rainy day today. Between showers, Daddy and I walked all 3 dogs. I am slightly damp right now, but happy. Your baby trees are rejoicing in the rain and looking very lush and green. I am going to do some writing this afternoon and some cleaning. I am fully acknowledging my grief for both you and Uncle Rob, but I also feel the need to be productive. I got a very sweet text from a friend last night. She had donated to OSI and on the 2nd anniversary of your death will light a Yartzheit candle in your memory. I am deeply touched.

We will leave for Indiana next Wednesday. Rob’s memorial service is next Saturday. We will remain in Clarksville a few days to give Cindy, Robbie, and Aaron our company and support. Tomorrow is our first day of Youth Formation at St. Clement’s and I am excited to be back in the classroom. I hope that you enjoy the noise and happiness emanating from our classroom down the hall to the chapel. Please give your Uncle Rob a huge hug from all of us. May light eternal shine upon you both. Love, Mom.

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Author: snort262

I am a wife, mom, long distance runner and fierce autism advocate. My background is in education. Currently, I am a PCA, an autism advocate, a fighter for kindness and social justice, and a fervent animal lover.

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